Newly Diagnosed

Welcome to the Texas Prader-Willi Association (TXPWA). You are probably feeling shocked, worried and scared about your newly diagnosed baby with Prader-Willi Syndrome. It may feel as if your world has been turned upside down, you are not alone!  TXPWA involves family members, caregivers and professionals that all want what is best for our children. 

  • Ask your pediatrician for assistance contacting Early Childhood Prevention (ECI) in your area. 
  • Make and appointment at the Prader-Willi Clinic located at Texas Children's Hospital, in  Houston, TX  832.822.3131.
  • Contact Prader-Willi Syndrome (USA) request package of hope.

Newly Diagnosed Form

Please, fill out the form, we will contact you for details about helpful programs and reading information.

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