Support Groups

PWSA (USA) maintains the following age-specific, closed Facebook support groups for parents of children diagnosed with Prader-Willi syndrome:

Birth – 3 Years
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To join this group and be a part of the Parent Mentoring Program, please go to www.pwsausa.org, click on New Diagnosis, and fill out and submit the form, or call 800-926-4797.
PWSA (USA) Birth to Three is an invitation-only sharing and support group for parents of infants and toddlers from birth to three years old , who are part of the PWSA (USA) Parent Mentoring Program- We provide a safe, secure place for learning, sharing and connecting with other parents and parent mentors- a place for asking questions, sharing experiences, and fostering friendships with parents of children the same age as yours… all in a hopeful, supportive environment sponsored and moderated by PWSA USA staff.

3 years – 5 years
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PWSA(USA) Three to Five is a sharing and support group for parents of children ages three through five years old, who are part of the PWSA (USA) Parent Mentoring Program, and/or were members of the PWSA 0-5 Yahoo group. PWSA(USA) Three to Five provides a safe, secure place for learning, sharing and connecting with other parents and parent mentors in real-time – a place for asking questions, sharing experiences, and fostering friendships with parents of children the same age as yours… all in a hopeful, supportive environment sponsored and moderated by PWSA USA staff. (To be a part of the Parent Mentoring Program please go to www.pwsausa.org, click on New Diagnosis and fill in the form, or call 800-926-4797)

6 years – 12 years
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PWSA(USA) Six to Twelve is a sharing and support group for parents of children ages six through twelve years old, who are (or would like to become) PWSA(USA) members and/or were members of the PWSA (USA) age specific Yahoo groups. PWSA (USA) Six to Twelve provides a safe, secure place for learning, sharing and connecting with other parents and parent mentors in real-time – a place for asking and answering questions, sharing experiences, and fostering friendships with parents of children the same age as yours… all in a hopeful, supportive environment sponsored and moderated by experienced PWSA(USA)  staff.  If you would like to become a member of PWSA (USA), please visit www.pwsausa.org/membership..  If membership is a hardship at this time, please email parentmentors@pwsausa.org. Scholarships are available. 

PWSA (USA) Grandparents
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And- introducing our newest group; PWSA (USA) Grandparents is a sharing and support group for Grandparents of children (of any age) with Prader-Willi Syndrome. This group provides a safe, secure place to express your feelings, ask questions and make connections with other Grandparents in similar circumstances. PWSA (USA) Grandparents is staffed and moderated by PWSA (USA) support personnel, and other Grandparents, so you can rest assured that questions will be answered quickly, and the information shared will be as accurate and up-to-date as possible.

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