What is Prader-Willi Syndrome (PWS)?

Prader-Willi Syndrome (pronounced PRAH-der Will-ee) is a non-inherited genetic disorder that occurs in approximately one out of every 15,000 births globally. PWS effects appetite, growth, metabolism, cognitive function and behavior. It is typically characterized by low muscle tone, short stature (when not treated with growth hormone), incomplete sexual development, cognitive disabilities, behavioral problems and chronic feelings of insatiable hunger complicated by a slowed metabolism. If not under constant supervision, including restricting access to food, PWS can lead to excessive eating and life-threatening obesity or death. PWS does not discriminate, it is found in people of both sexes and all races worldwide. 


- News and Events -